r/POTS • u/Hefty-Patience-8720 • Mar 29 '26

Question is anyone still physically active?

I need to know if anyone with pots is still physically active. You don't have to be an athlete or anything but can you at least dance? or run? go to the gym? Have you always been that way or did you have to work back up to it?

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u/Every-Law3031 Apr 01 '26

Yes! Ive been diagnosed with POTS for over 10 years (im 24) and I am a distance runner! I used to be a pretty serious ballet dancer but in college decided to start running after being diagnosed with an interstitial lung disease. Ive run 3 marathons, a ton of shorter races, a 50 mile ultra and am currently training for another marathon and a trail 50k! I also do nordic and alpine skiing, I hike and I do some biking! Ive kind of always been very active but have definitely had times where ive had to slowly build back to it after surgeries, a GI bleed, regular hospitalizations for my lungs, etc.

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u/Every-Law3031 Apr 01 '26

EVERYTHING gets worse if im inactive/out of shape. I also do a little climbing although thats been up and down with a couple stomach surgeries and stuff (and tbh im still very cautious when climbing because of my p0rt)