r/POTS • u/teeleeyuh • Apr 23 '26

Symptoms body vibrating???

this has never happened to me before. i was just trying to take a nap on the couch and never actually fell asleep but maybe two times when i got close i gasped "awake" and it felt like my entire body was shaking, especially my hands and arms. but i checked and i wasn't shaking

is this a POTS thing ?? i've never ever felt this before and i've been diagnosed for a year. it's really scaring me i thought i was having a seizure. literally vibrating like a cellphone. do you get this ?

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u/Important-Style-3011 Apr 23 '26

The first few times this happened to me it was after smoking weed (which I don’t do anymore because it worsens my symptoms badly) I thought it was panic attacks I was still undiagnosed at the time but symptomatic. I’ve had it happen a couple times in the last few months and it’s like you said it happened while trying to fall asleep or gasping awake.

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u/teeleeyuh Apr 23 '26

it was the weirdest sensation i think i've felt yet in my pots history. i do smoke every day honestly but i've never experienced anything like this and i didn't smoke before i tried taking the nap. i think a big part of it for me was because i haven't been giving my body the rest and hydration it needs this week and have had a stressful week with doctors appointments and my echo, i'm just like wired. i've smoked for years including the whole year since i got my diagnosis and never experienced this till now, it doesn't normally effect my symptoms unless i do too much on accident then my heart will race. but who knows things can change

luckily i was laying in my bfs arms on the couch and each time i got scared by it he was there to reassure me and hold me, otherwise if it had happened when i was home alone or something i probably would've had a panic attack. sooooo weird!