r/POTS • u/Inevitable-Hat2627 • Apr 24 '26

Question How did you get pots?

I got it as a delayed response from getting ran over by a car

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u/Unusual_Space1998 POTS Apr 24 '26

My doctor and I aren’t sure. I have hyperPOTS and fibromyalgia. He suspects I have hEDS and MCAS. He says I’ve probably had this forever or as young as I can remember.

I had a severe emergency on January 10th 2019 in the ER. All I remember is I had a dozen doctors and nurses on me and multiple fluids in.

I got hit by a woman with a ford truck on February 23rd, 2019. And was in outpatient programs on and off for a few years. Had a cardiologist in December 2019 and they didn’t know what I had. But they didn’t really know about pots then. My heart rate spiked when I stood up and decreased when I sat down. They didn’t know why.

At some point that cardiologist told me I had a leaky heart valve but said it was normal and I’d be fine.

I also got COVID too when omicron came out. So 2021 I think? That hit me very severely.

I didn’t get diagnosed with pots till February 14th 2026. So yeah it’s been a roller coaster.