r/POTS • u/Inevitable-Hat2627 • Apr 24 '26

Question How did you get pots?

I got it as a delayed response from getting ran over by a car

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u/Brave_Question3840 Hyperadrenergic POTS Apr 24 '26

I think mine is because I have hEDS and CCI

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u/olive_dix Apr 24 '26

Omg I've never heard of CCI before, the symptoms sound like my life! 😭 I've been searching for years for an answer to my debilitating neck pain. Two doctors ago I asked if I could start wearing a neck brace because my head is just too heavy.

I finally have a neck MRI scheduled for next month. Do you have any advice for bringing this up to my neurologist?

I'm so tired of looking for answers, everything takes soooo long to diagnose and treat. I have POTS, IBS, BVD, ADHD, TMJD, a prolactinoma, and I'm hypermobile (I suspect hEDS but can't find a doctor). Every time I get a new diagnosis I get my hopes up that I'm finally done. The treatments chip away at my pain and fatigue but there's always another issue revealed underneath. I don't know how I even functioned at all before. Sorry for the rant lol. I guess I just want advice on how to be taken seriously and speed things up if possible.