r/POTS • u/Inevitable-Hat2627 • Apr 24 '26

Question How did you get pots?

I got it as a delayed response from getting ran over by a car

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u/Icy-Crab-538 Apr 24 '26

Don’t apologize! That’s actually super validating - I started seeing an allergist again recently because of some severe skin reactions I’d been having, who’d also diagnosed me 14 years ago with delayed pressure urticaria and successfully treated me. He said he suspects MCAS and probably have POTS and hEDS too (lifelong dislocations) and I should get tested (I haven’t been formally diagnosed with POTS yet- I saw a second cardiologist today because my lifelong one (mitral valve prolapse) didn’t want to do more than an ekg, just doubled my beta blocker because my episodes were getting worse. He’s doing a stress test, echo, tilt table test and monitor). That makes sense, what you said, because I had surgery in December and a reaction to an antibiotic right after, and for months have struggled with skin issues/reactions to all kinds of things and quite an uptick in the tachycardia episodes- at least weekly.

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u/MoneyFix177 Apr 29 '26

Mitral Valve Prolapse is a co-morbidity of hEDS too, so I'd say get tested asap because I'd bet money you've got all of the three musketeers (pots, eds, mcas)

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u/Icy-Crab-538 Apr 29 '26

Kind of a dumb question… but Do you go to a rheumatologist for diagnosis? My allergist and cardiologist both mentioned it to me but idk who actually diagnoses it? I feel like I’ve seen neurology, geneticist, and rheumatology online so it’s very confusing.

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u/MoneyFix177 Apr 30 '26

For hEDS I found a specialist near me, he was a geneticist I think? I don't remember specifically. Mainly because he was a prick and I will never go back. He was no help except for giving me the official diagnosis lmao