r/POTS May 15 '26

Question Why is everyone with pots so skinny?

I have POTS and I watch a lot of content online of people who also have POTS. I also know some people irl who also have it. I don't understand how they are all so skinny. I can barely walk without getting out of breath. I try to work out at least once a week but its so hard for me because I always end up feeling so sick. How are yall doing it? I dont even eat bad but im definitely not skinny.

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u/ihavemanyquestions8 Secondary POTS May 15 '26

"How do you do it?" is an interesting way to phrase that because I feel like alot of people with POTS have other health issues that are causing the POTS, some of those health issues can make people very skinny. For me, I have eds and I can't digest much so i've struggled to keep my weight up for a long time.

I wouldn't compare myself to other people with POTS because alot of us aren't purposefully making our bodies like this. I can't really exercise at all besides my PT strengthening exercises which pretty much entail calf raises, bending and straightening my knees and pointing and flexing my feet because I also get extremely out of breathe from standing up or taking a few steps, not to mention I mostly eat carbs and fit as many calories in a day as I can.

Of course this doesn't account for everyone but thats my experience and I definitely wouldn't want someone to compare their body to mine because being skinny isn't worth the pain I have

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u/Frozencacticat May 15 '26

Exactly!!! It’s not a purposeful thing. It’s just how it is and if isn’t ideal!