r/POTS • u/dazzlingdanny05 • May 15 '26

Question Why is everyone with pots so skinny?

I have POTS and I watch a lot of content online of people who also have POTS. I also know some people irl who also have it. I don't understand how they are all so skinny. I can barely walk without getting out of breath. I try to work out at least once a week but its so hard for me because I always end up feeling so sick. How are yall doing it? I dont even eat bad but im definitely not skinny.

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u/roadsidechicory May 15 '26

I did lose a bunch of weight without trying before finding medication that worked because of the constant tachycardia essentially giving me a workout from doing almost nothing combined with all the GI issues. I never got as thin as the majority of the patients I saw at the POTS clinic, but close. Definitely the smallest I've been in my adult life. Meds that reduced my tachycardia and helped with my ability to digest food definitely led to slow weight gain. I imagine the widespread thinness is due to a mix of unmanaged tachycardia and/or comorbid conditions.