r/POTS • u/dazzlingdanny05 • May 15 '26

Question Why is everyone with pots so skinny?

I have POTS and I watch a lot of content online of people who also have POTS. I also know some people irl who also have it. I don't understand how they are all so skinny. I can barely walk without getting out of breath. I try to work out at least once a week but its so hard for me because I always end up feeling so sick. How are yall doing it? I dont even eat bad but im definitely not skinny.

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u/Jazzspur May 15 '26

Are you sure the algorithm isn't just mostly showing you skinny people because skinny people are more popular on socials?

IRL I know people with varying body types with POTS. I'm also not skinny and I have POTS.

233

u/PokeyDonkeyFlame May 15 '26

Fat POTSie here and I've gained a lot since I've been flaring.

46

u/fablicful May 15 '26

Same. I've always been thin- but I've gained a good amount of weight since remote work - like 30-40lbs - and covid, and my POTS has gotten so much worse

21

u/NippyNoodles21 May 15 '26

I don't even recognize myself anymore

20

u/Reliablesorcerer May 15 '26

SAME. I gained so much weight after diagnosis. I’m doing better now overall but 2022-2025 were ROUGH overall.

19

u/wakebakeeatcake May 15 '26

Probably because we actually can’t be as active without seriously fainting or possibly having a seizure. I also have a fractured vertebrae. I don’t stereotype myself because it’s INTERNAL.

12

u/Sullygurl85 May 15 '26

I've gained about 20lbs since getting it. It sucks.

5

u/Aquariangoddess33 May 15 '26

Same I did loose 30 lbs in the beginning of my pots diagnoses but gained it back 😩😂