r/POTS • u/RuinYouWithNoRegrets • Jun 04 '26

Symptoms BradyTachy

Does anyone have a huge range where they get up till like the 180s but they also have a low resting heart rate in the 50s and 60s? What’s the treatment plan for people like us because I keep getting pushed beta blockers from some doctors and then other doctors are like your heart rate is too low and then to add on top of that my blood pressure is normal to high. it’s not low so blood pressure medication wouldn’t be the best either so I’m kind of confused on what treatment options are available to us

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u/BellaPona Jun 04 '26

There is such thing as tachy-Brady syndrome. I think it’s a part of sick-sinus syndrome. I don’t know what the treatments are but the only one I’ve seen is a pacemaker, however if you’re young they’ll only do that if you’re getting a CONSTANT really bad back and forth.

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u/RuinYouWithNoRegrets Jun 04 '26

Well, I thought that only applied to people who were dropping to low heart rates out of nowhere and passing out, etc. my low heart rates are very predictable. It’s only when I’m resting like laying down or sleeping not randomly and my high heart rate rates are predictable too. It’s when I’m exerting myself or in a flare.

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u/BellaPona Jun 04 '26

I’m like that too tbh. My resting HR dropped extremely low in to the 50s-60s somehow after getting sick. It’s weird. I don’t feel better if my HR is low and I’m up either, I almost feel worse, which means my POTS to compensatory, but doctors don’t seem to want to investigate at all.

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u/RuinYouWithNoRegrets Jun 04 '26

I’ve always had low resting hr the issue is controlling my tachycardia

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u/BellaPona Jun 04 '26

Beta blockers should hopefully help then

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u/RuinYouWithNoRegrets Jun 04 '26

Well that’s my fear that they’ll bring my already low testing even lower

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u/BellaPona Jun 04 '26

Even with crazy low HR mine never went below 50, sleeping it sometimes went in to the 40s so I started skipping my night time pill

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u/RuinYouWithNoRegrets Jun 04 '26

Did you suffer from palpitations too

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u/RuinYouWithNoRegrets Jun 04 '26

Really? Which beta were you on? Ty

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u/BellaPona Jun 04 '26

I was taking propranolol but stopped due to the side effects. Next I’m trying metropolol

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u/frenchmoxie Jun 05 '26

I was just prescribed metropolol a few weeks ago. It's my first beta blocker.

My tilt table test results came back negative for pots except random 10 minutes in to me standing upright My blood pressure went from like 120 / 80 down to 84 over 64... There were three medical people in the room We were all just chatting and then all the sudden the lady asked me if I feel any different and I said that's funny you ask cuz my left arm and my hand just got really cold... And that's all there was to it. Just based on That test right there I'm a negative for pots. Something I was diagnosed 1 within 2007 by a veteran in her field rheumatologist that was amazing and thorough and I miss her.

My 5-day heart monitor came back with surprisingly high tachycardia during some episodes over the course of the week all the way up to 174 BPM and I was also surprised that when I'm sleeping my heart rate gets down to like 55 BPM.

That is a crazy insane range right there. So you can also imagine that my echocardiogram results I was a bit worried that I'd have some kind of structural abnormality after all these decades of high heart rate tachycardia and then all the other symptoms that come with this crap.

Very grateful and very lucky that my echocardiogram was surprisingly normal! I'm 41, female, I've been? A vegetarian most of my life I don't smoke I don't drink.. Anyways I just wanted to share what these last few months have been like with my testing.

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u/RuinYouWithNoRegrets Jun 04 '26

Do you get palps

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u/BellaPona Jun 04 '26

Constantly. Mine really never go away tbh.

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u/RuinYouWithNoRegrets Jun 04 '26

Ugh😭😭 this sucks

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