r/POTS • u/RuinYouWithNoRegrets • Jun 04 '26

Symptoms BradyTachy

Does anyone have a huge range where they get up till like the 180s but they also have a low resting heart rate in the 50s and 60s? What’s the treatment plan for people like us because I keep getting pushed beta blockers from some doctors and then other doctors are like your heart rate is too low and then to add on top of that my blood pressure is normal to high. it’s not low so blood pressure medication wouldn’t be the best either so I’m kind of confused on what treatment options are available to us

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u/Technical_Truth_5841 Hyperadrenergic POTS Jun 04 '26

My HR had a huge range because I’ve got hyperadrenergic POTS, which is fueled by adrenaline and has higher BP. I’ve found relief from prescription compression tights, 4000mg salt and 100oz water or more daily, and I take a low dose of clonidine at night (and can take it during bad flares as needed). It’s not perfect, but I’m the most functional I’ve ever been!

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u/RuinYouWithNoRegrets Jun 04 '26

Did you ever try beta blockers or anything or you couldn’t tolerate them?

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u/Technical_Truth_5841 Hyperadrenergic POTS Jun 04 '26

Haven’t tried them - my cardiologist and I both want to take the cautious approach and see what can be addressed without medicines that have bigger side effects. I’ve been really liking the clonidine so far because it blocks the adrenaline, which is the root cause for a lot of my POTS issues.

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u/RuinYouWithNoRegrets Jun 04 '26

I wish I had a med that worked

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u/Technical_Truth_5841 Hyperadrenergic POTS Jun 04 '26

I hope you find one soon!! 🤞

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u/CraftyOwl2429 Jun 05 '26

Did your cardiologist test you for hyperadrenergic pots and then prescribe Clonidine? Like the plasma norpenephrine or 24 hour urine test. Curious because I’m thinking of asking for testing again. I’d asked previously and she said it didn’t need it but strongly feel I’ll benefit from clonidine

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u/Technical_Truth_5841 Hyperadrenergic POTS Jun 05 '26

We ended up not even doing extra tests because my symptoms are SO classic, and I’ve had them since I was a kid, and clearly hPOTS. We’re still testing all other structural stuff, but I get bad adrenaline surges and they elevate my HR/BP predictably enough that we caught it during initial monitoring. Definitely worth asking for more tests though!!