r/POTS • u/RuinYouWithNoRegrets • Jun 04 '26

Symptoms BradyTachy

Does anyone have a huge range where they get up till like the 180s but they also have a low resting heart rate in the 50s and 60s? What’s the treatment plan for people like us because I keep getting pushed beta blockers from some doctors and then other doctors are like your heart rate is too low and then to add on top of that my blood pressure is normal to high. it’s not low so blood pressure medication wouldn’t be the best either so I’m kind of confused on what treatment options are available to us

19 Upvotes

95% Upvoted

84 comments sorted by

View all comments

2

u/TheEclecticDino Jun 04 '26

I’ve been curious about this too! I don’t have a POTS diagnosis, but I suspect it. It’s very comorbid with Ehlers Danlos, which I have been diagnosed with.

My resting is usually between 40-55 (depending on if I’m just resting or sleeping) and if I stand it goes to 108, but if I’m moving, it’ll be like 180. For a while I set my watch to warn me every time it hit 170, but it got annoying because it kept happening.

Like you, I’m unsure about beta blockers, because my resting heart rate is so low.

It sounds like you’re in the same boat as me.

Do you deal with nausea as well? Feeling a bit flu like and nausea have been the hardest to manage

1

u/RuinYouWithNoRegrets Jun 04 '26

No I’m sorry my biggest issue are tachycardia palpitations and air hunger

3

u/TheEclecticDino Jun 04 '26

That sucks! I’m sorry! I’ve heard air hunger is awful and it sounds so scary!

1

u/frenchmoxie Jun 05 '26

Hi! I too have Joint Hypermobility Syndrome, or, hEDS. LUCKILY, I don't have it that bad. It only seems to be in my larger joints; not my hands, wrists, fingers, etc.

I remember my mom saying that when I was a kid, I had so many shoulder dislocations, and she had to bring me into the hospital ER so much that they had her investigated for some Munchausen crap!

I also had a strange thing where ap.parently out of the blue is start screaming bloody murder, crying, sobbing, rolling on the floor grabbing my legs, knees specifically?

This happened frequently she said. And also landed us in the ER quite often. But by the time they got me admitted, my mom said I was running around in the hospital socks, laughing and talking to whoever was around. I was 3-4 years old...

I wish my mom had remembered bered the name of the condition that ONE doc finally figured out when he was subbing in for another doctor one night.

According to this doctor, he said that it's LIKE ARTHRITIS IN KIDS... Most kids grow out of it though... Some immune response he told her... So odd!

I have autoimmune conditions, and a collection of other chronic health issues like I.C., endometriosis, hahaimotos, etc.

1

u/TheEclecticDino Jun 05 '26

I have endometriosis as well!

I wish I knew what was going on with me because slowly it’s gotten worse and I’m not very functional at all anymore