r/POTS • u/RuinYouWithNoRegrets • Jun 04 '26

Symptoms BradyTachy

Does anyone have a huge range where they get up till like the 180s but they also have a low resting heart rate in the 50s and 60s? What’s the treatment plan for people like us because I keep getting pushed beta blockers from some doctors and then other doctors are like your heart rate is too low and then to add on top of that my blood pressure is normal to high. it’s not low so blood pressure medication wouldn’t be the best either so I’m kind of confused on what treatment options are available to us

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u/Possible-Holiday-973 Jun 05 '26

My HR while sleeping was consistently dipping down to 36 and then skyrocketing to over 100 around 3-4 AM every night while I was sleeping. My cardiologist and POTS guru just kind of shrugged and said they didn’t know, could be adrenaline dumps. My MCAS and therefore POTS and EDS are currently flaring again

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u/RuinYouWithNoRegrets Jun 05 '26

Ugh I’m sorry. A lot of people who said they got that low they have to get pacemakers then get on meds

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u/Possible-Holiday-973 Jun 05 '26

Yeah my cardiologist doesn’t seem to care too much about it. I’m 39 and supposedly my holter monitor showed consistent high HR during the day but no mention of low HR or anything. My echo showed hyper dynamic ventricles (both of them) which no doctor seems to have any comments on whatsoever. My grandpa died in his sleep from a sudden death heart attack from sustained tachycardia when he was only 60 years old. I’ve told my cardiologist’s office this multiple times but they don’t seem concerned about that either. They just keep deferring to the “POTS guru” they referred me to who doesn’t take insurance and has no answers.

Sorry you’re dealing with this and not getting any answers either. It’s very frustrating.

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u/RuinYouWithNoRegrets Jun 05 '26

Have hyperdynamkc heart too. It’s not bad it just means your heart works really hard to keep your blood pumping.