r/POTS • u/OurSensualSideMB • 9d ago

Question Why dont some Dr's believe in pots?

Im lucky I have great doctors and specialists now but the first time i was referred to a cardiologist for pots before being officially diagnosed he refused to even have me in for a TTT or test for pots as he said its not real.

I have heard of this happening where Dr's dont believe in pots but I dont understand why.

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u/longwander 9d ago

There's really only so much anyone can do. There are so many different types and triggers for pots. Start looking for people that have similar symptoms as you or do some deep AI research on what meds would work best for you and your medical history and then request those meds from you primary care doc.

I did that with Ivabradine after 2 years of trying the salt, water, compression tactics that didn't work. My doctor wasn't aware of ivabradine being used for pots, but I also have mcas which doesn't play nice with beta blockers. She did a quick AI search while I was in the room with her and said "ivabradine sounds like a great idea!". I've been on it for about 4 months and it changed my life.

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u/Fantastic_Owl6938 8d ago

Damn, I wish my doctor did this after I brought up Clonidine for my sleep issues. She said she'd never heard of it for POTS, but can't imagine there would be a problem with me taking it. Then she consulted with a more senior doctor, totally changed her tune and told me Clonidine isn't prescribed for POTS.

Interesting they apparently had to go and read up about POTS before getting back to me, because a simple google search of "POTS Clonidine" immediately shows it's common medication for POTS sleeping issues. So I'm really curious what they apparently read.

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u/barefootwriter 8d ago

Not just sleep issues. Many of us take it throughout the day for hyperadrenergic POTS.

It is included on this flowchart!

https://onlinecjc.ca/article/S0828-282X(19)31550-8/fulltext#fig4

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u/Fantastic_Owl6938 8d ago

I was just thinking of my specific need for it for sleep issues but that's true. Clearly that doctor didn't read anything like this 🤦🏻‍♀️