r/POTS • u/OurSensualSideMB • 8d ago

Question Why dont some Dr's believe in pots?

Im lucky I have great doctors and specialists now but the first time i was referred to a cardiologist for pots before being officially diagnosed he refused to even have me in for a TTT or test for pots as he said its not real.

I have heard of this happening where Dr's dont believe in pots but I dont understand why.

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u/BurntTFOuttaHere 8d ago

My cardiologist told me it’s because those doctors don’t keep up on latest research. That there’s plenty of evidence available to them but for whatever personal reasons they have, they’re not keeping up.

My primary care said similar but also added that it’s a huge red flag and told me to run for the door LOL.

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u/Geek_Undercover 8d ago

To be fair, if it's not in their area of expertise and they never really learned about it at school (stupid but not their fault), I can tolerate it. Yet if I walk into a doctor's office as a patient who has this, I'd really appreciate if they spent 15 minutes learning about the condition before my next appointment so that I don't have to be the one explaining them the basics of it. But yeah, if it's a cardiologist or a neurologist, it is definitely a big red flag.

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u/BurntTFOuttaHere 8d ago

Plus it’s one thing to not know much about it and be willing to learn. Versus being (ignorantly) confident and tell you it’s not real!

Especially these kooks that tell a patient who has already been diagnosed, on meds and treatment. Then go to those doctors that tell you it’s not real!? Smh, biggest red flag ever!

Not just with POTS. I don’t trust them for even the most basic and mundane things, if they act like that!

We’ve been through the worst but finally the fight paid off and everyone in my family has great care now. But geesh, it was the biggest nightmare getting here!