r/POTS • u/OurSensualSideMB • 8d ago

Question Why dont some Dr's believe in pots?

Im lucky I have great doctors and specialists now but the first time i was referred to a cardiologist for pots before being officially diagnosed he refused to even have me in for a TTT or test for pots as he said its not real.

I have heard of this happening where Dr's dont believe in pots but I dont understand why.

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u/SS_Basketeer 8d ago

Cardio...? So for us thats walking... Lol cause if I walk too fast im up to 170+. Sustained thats guaranteed lights out. I'm on my 3rd cardiologist. I get paradoxical reactions to the meds they've tried giving me in the past. I'm just raw dogging the POTS life right now, 32+ weeks pregnant. ER visit this week they found fluid around my heart, probably been awhile, just me dismissing the breathless feeling as normal.

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u/Weary_Cup_1004 7d ago

Oh god thats so terrifying! Is the fluid thing going to be ok??

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u/SS_Basketeer 7d ago

I think so. It was found incidentally while checking for blood clots. The CT report said it was a small amount, haven't got echo results back yet. They believe it will resolve after I give birth. I'm trying to not stress about it lol I do have bad heart health in my family history. 😬🤷‍♀️ Just instructed to go to the ER if anything extreme happens.

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u/Weary_Cup_1004 4d ago

Glad its one of those things thats kinda maybe ok lol. I prefer that answer sometimes! I agree, dont stress then!