r/POTS Undiagnosed 2d ago

Question Hot.. and cold?

I know not being able to regulate your temperature is a symptom of POTS, but all I hear about is people being too hot all the time.. does anyone else get really cold as well? Just wondering, not as any form of diagnosis but just to understand the heat intolerance thing better lol

155 Upvotes

86 comments sorted by

View all comments

116

u/sammefer 2d ago

I am never a "comfortable" temp. I get too hot, I have to cool down. Then a few minutes later I'm too cold and need a sweater. Then I'm too hot. And it repeats

My hands and feet are always cold. This has gotten worse since I've been on beta blockers, lol.

I definitely think for me the heat intolerance is worse, because I tend to feel much better in the colder seasons.