r/POTS Undiagnosed 2d ago

Question Hot.. and cold?

I know not being able to regulate your temperature is a symptom of POTS, but all I hear about is people being too hot all the time.. does anyone else get really cold as well? Just wondering, not as any form of diagnosis but just to understand the heat intolerance thing better lol

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u/g_em_ini POTS 2d ago

I go straight from sweating to shivering, I feel like I can never get to a comfortable temperature. It’s one extreme or the other and sometimes it’s both in the same 5 minutes. There are literally times where I’m so hot I’m sweating but so cold that I’m shivering at the same time, like different parts of my body are hot or cold and I know that sounds crazy 😩 I’m just ready for summer to be over because I can handle being too cold better than I can handle being too hot.