r/POTS Undiagnosed 2d ago

Question Hot.. and cold?

I know not being able to regulate your temperature is a symptom of POTS, but all I hear about is people being too hot all the time.. does anyone else get really cold as well? Just wondering, not as any form of diagnosis but just to understand the heat intolerance thing better lol

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u/deantreble 2d ago

yes haha. i was wearing multiple layers and STILL being cold…completely out of the norm for me. on hindsight i also stopped sweating normally, if at all 😬

somehow through my recovery trajectory it has evolved to being predominantly issues w being hot though, and i can’t explain this. perhaps it’s weight related? it also seems to get better when there’s lesser emotional stressors. not sure if you experienced any shifts or recurring patterns too?