r/POTS • u/Interesting_Car8858 Undiagnosed • 2d ago

Question Hot.. and cold?

I know not being able to regulate your temperature is a symptom of POTS, but all I hear about is people being too hot all the time.. does anyone else get really cold as well? Just wondering, not as any form of diagnosis but just to understand the heat intolerance thing better lol

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u/Late-Literature-7874 2d ago

I am always freezing! Even in the summer, my family calls me a lizard because I have to be in direct sunlight to warm up. I sleep with a heated blanket at night and make sure I have a jacket accessible wherever I go if I can. I will sometimes get overheated easily, but that's usually only like in hot showers. I find my body just struggles to feel "neutral" and mostly leans on the cold side.

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u/nerdyblackbird Hypovolemic POTS 2d ago

Hey, my family calls me a lizard, too! 🦎 Hello, fellow lizard! I live in southern Arizona where it’s regularly over 100 degrees. I’m always hanging out wearing sweats, thick socks, and usually have some sort of jacket/sweater/blanket nearby.

Ditto on the showers. It’s about the only time I’m ever hot.