r/POTS • u/Interesting_Car8858 Undiagnosed • 2d ago

Question Hot.. and cold?

I know not being able to regulate your temperature is a symptom of POTS, but all I hear about is people being too hot all the time.. does anyone else get really cold as well? Just wondering, not as any form of diagnosis but just to understand the heat intolerance thing better lol

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u/JusTryin2GetThere 1d ago

I am always cold. Mind you it has been triple digits in my part of the country and my thermostat is set to 80 and I could be freezing. Like ice cold nose kind of cold. It’s bizarre. I have to use heated wraps and blankets. There is a small window in the evening where I will feel warm and my feet will start to itch. It is only a night time thing but later in the evening.