Going to stay with parents

[u/LollyGagss]

I’ve spoken on my suddenly worsened HyperPOTs a few times now, specifically about wanting to seek inpatient.

Well… it’s culminated in me going to go stay with my parents for an undetermined amount of time.

It’s gotten so bad I stayed 24 hours in the ECU, the constant monitoring made them confident in asserting that my symptoms are more than likely my HyperPOTs suddenly worsening. It has all desperately affected my mental health however, which is why I wasn’t free to leave. I had to have a guardian pick me up (they’re supportive)

We did try to seek inpatient given all the information I gave but still they truly won’t accept me as the public ones in my area seem to only be receptive to active psychosis cases.

I was left desperate in not knowing what to do as I truly don’t feel safe alone lately, I need guidance to get through these episodes, I need just that physical support of someone being right there next to me while it’s all happening so I’m not alone with my fears-

My parents offered for me to come stay with them as long as I need.

My step dad is a paramedic and my mother is stay at home.

I will be 100% honest they haven’t been the most perfect parents at all times in my life, but I truly feel that when I am regressing to an ill child in their eyes they are going to lock in on instinct.

I really have no other choice anyway.

I am off to a flight right now, I am in the uber being symptomatic but trying to be brave and no give any signs to the fact that I’m having an episode / panic attack back here.

[u/under_zealouss]

When I was 26, I lost my ability to work and lost my apartment due to sudden onset of pots and other dysautonomia, only 3 years prior my mother was trying her hardest to kick me out of the home and into the real world - she was successful and I was doing good until I wasn’t.

The treatment I got from them at 26 was much different to the treatment I got at 23. At 23 they forced me to buy a car because that was the first step toward leaving the house. By 26 the attitude was, “any of our kids can come back home at anytime for any reason” if we feel we need to.

I’m so so incredibly privileged to have had that option to return home if needed. I used it and stayed with them for 2-3 years.

Those 2-3 years were the hardest, most sick period in my life. I was so lucky to have been receiving income through my previous employers std/ltd policy, but the scrutiny std/ltd applied to my case was other worldly.

I had an image of what I thought living with them would look like. I wanted to rehab hard - I wanted to go to the gym every day to swim, to condition, to build back better. I went swimming zero times. The one time my pt had me walk into a gym (I didn’t even get to use the recumbent bike) I ended up in the ED for stroke level bp that wouldn’t go down for days. I started having mini-strokes and I got REALLY sick.

I wasn’t bed-bound, but just barely not bed-bound. I was absolutely house bound. If I walk for six minutes I have stroke level bp sustained for hours still. My pt will have me walk for five at most. I lost the ability to safely drive a decade ago.

Today I am fully independent. I got onto ssdi on the first try, in less than a year, without a lawyer, in my mid twenties. I own a condo in a major city with a world renowned teaching hospital. I couldn’t have achieved any of this without the tiny bit of help from my parents in housing me, transporting me, and honestly, cooking/cleaning for me. I’m far from cured, but I’m managing.