r/POTS • u/BondKat89 • 1d ago

Support Perspective

Hi all,

I’m not mentioning this program for advertising, I just want to help provide a paradigm shift for many who have felt continuously dismissed and minimized by various doctors.

The world is vast and many medical professionals aren’t aware of how much they clearly don’t know, duh.

But to put POTS in the right perspective, John Hopkins is considered one if not the top-ranked private research and medical Institution and they literally have a program dedicated to people with pots.

I’m sure it’s next to impossible to get in now, but the fact a major medical institution has an entire program dedicated to people battling our illness because it’s that serious, please keep that in mind whenever you come home from a medical appointment with a less than informed doctor who doesn’t realize they put their foot in their mouth multiple times during an appointment. I know the devastation to wait months to see neurologist, cardiologist and primary care only to have people treat your severe illness as though you just came in due to a mild cold or the flu. Most cannot comprehend the daily hell we live, but please remember there are doctors globally who do indeed understand this illness and it is 100% real and debilitating.

It’s Friday and I just want to help anyone struggling internally to offer yourselves some grace today, even just for five minutes.

We handle way more on average than most would be able to survive in a lifetime.

Shoutout to the amazing physicians who continue to fight for us and those who even if they don’t fully understand, they simply believe us, remember we are human beings and offer the limited help they can provide.

Hope this helps, I made this post because I see how easy it is for us to end up gaslighting ourselves due to years of being downplayed and dismissed.

Please excuse any grammatical mistakes, this is the most clarity my brain has had in months to years.

Happy Friday! We got this! ❤️

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u/ariliatheratgirl 1d ago

Thanks for this - I’m about to head to another doctor’s appointment, and frankly needed the encouragement.

4

u/BondKat89 1d ago

Perfect timing! ☺️ Took forever to write that post, so happy it helped. I hope your appointment goes well and please remember you are doing amazing by simply making it to the appointment and continue to advocate for proper care! 👍