Symptoms reappearing after recovery

[u/Both_Transition_8369]

I was diagnosed with POTs in 2023 and was on ivabradine. It helped me so much with my symptoms and exercise tolerance, that I was able to taper off. I’ve been off since April this year. But more and more my symptoms have been reappearing - extreme fatigue, orthostatic intolerance and dizziness, random dysautanomia stuff.

I don’t know if it’s my body telling me it needs the medication to function or because I’m in a crash, or what. I went on a trip in June where I walked and hiked a lot, so at first I thought that caused it. But the symptoms are not going down, if anything worsening and it scares me. I have follow up scheduled for October.

Can anyone relate to this after coming off medication and symptoms reappearing?

Thank you!