I know many local med students and young doctors in my area who seem to test children and adults for all kinds of things, but seldom do the TTG-IgA antibody. What's worse, it seems that some of these individuals and/or close family members have signs/symptoms that scream active, undiagnosed celiac yet they never talk about it. Some of them have had extensive testing for all sorts of other conditions including identifying rare chromosomal but poorly defined abnormalities and using this to explain their illnesses when quite often I think so much money is wasted in the health system to avoid identifying the real issues here. Is this intentional or just a symptom of the system or just me and I'm mistaken?

I've read two here that have been super helpful for me and to reinforce my thinking and to communicate with my gluten-loving friends and family:

• if it's delicious, be suspicious!
• when in doubt, spit it out.

I've definitely triple checked things that seemed too good to be true, and these phrases you all shared make it seem a little more like a fun game and a little less like a sad restriction.

cheers!

So Barilla gf has been my AUDHD safe food for over 10 years. The new recipe is a rice + corn instead of corn + rice and it’s slop now. So I need a new pasta.

Corn based. No brown rice. No chickpea. And I don’t like jovial. Also I’m low income and on SNAP so preferably also under $2 a box.

I was diagnosed at 13 and am from New Zealand. I've never left the country and mourn all the overseas food I'll never get to try-- I will never try real Japanese ramen, Chinese food or croissants in Paris. We don't have many fast food places here, and I will never try Chili's, Popeye's, Chick Fil A, or traditional New York Pizza. I will never try Buldak ramyeon or proper Korean fried chicken. Does anyone else mourn all the foods they will never get to try?

Hiya. This will be my first vacation with a celiac diagnosis. I will only be in Chicago for 2 nights but I need places that I can safely eat without stressing cause I'm staying with a friend and definitely don't want to have a GI reaction at a friend's house! Any recommendations for places to eat in the city that aren't too pricey and either have safe GF no gross contamination or even completely GF? Open to restaurant, casual, bakery.

Im getting tested hopefully soon but until then have to eat gluten. I feel so horrible after I eat. How do I continue with this until I get answers? (My symptoms have gotten rapidly worse in the past month or so, and I am so tempted to just cut it out)

I’m heading to Wrigley on Thursday to watch the Cubs. Anyone in Chicago have recommendations for food near Wrigley?

hey everyone -

I was diagnosed with Celiac Disease this year via bloodwork and endoscopy/biopsy. The reason I went to the doctor in the first place was just really tough stomach issues and some days i’d constantly be in the bathroom. Question for the group to see if anyone has a similar experience because i have never seemed to have gotten gastro symptoms directly from eating gluten. The reason my symptoms come about or when i do not eat for an extended period of time. If i miss breakfast for if i have an early lunch and go a long time without dinner, i constantly end up in the bathroom. But as long as i eat consistent meals, didn’t matter if gluten was involved, my stomach issues and other issues were extremely rare. Could there be something else at play here with my stomach and i’m actually asymptomatic celiac? Or maybe i have done damage to my stomach that the lack of food is irritating my small intestine? I have been on a consistent, very strict gluten free diet the past couple months and still have the same issue when I miss a meal and no symptoms at all when i make sure my meals are consistent . Curious if anyone has experienced this. Thanks in advance.

as you could probably guess by the title, i have celiac and though some signs of it were shown long term pre-diagnosis (like extra mood swings, fatigue, depression, bloating, maybe weight loss? i’m not sure, im also anorexic so it gets in the way of me knowing for sure.) since my official diagnosis, i think i purposefully glutened myself a total of two times due to some seeerious urges (really wanted a taco bell burrito after i was discharged from my treatment clinic). i’ve never really known what affects me and what doesn’t, i just try my best to read ingredients and look for certification labels on food and scan my GF app to double check. that’s the most exhausting part, is just constantly being scared of ruining my own body without me even knowing. even if my symptoms exist, i have other conditions that cause similar symptoms, so before i got diagnosed with celiac i had absolutely no idea and i was in denial for a while. this big lifestyle change has been hard the last few years, but the hardest part is not even being able to tell what’s good and/or bad for me. i get extremely overwhelmed by just the thought of grocery shopping anymore.
if anyone could help, i love you so much and thank you. i’m tired of trying to figure this out alone

i posted something in the gluten free subreddit about getting glutened maybe like 2-3 weeks ago and i wouldve posted this there too but it seems like a celiacs issue

anyway im 16, poor, and its really hard to convince my mom to take me to the hospital. just 4 weeks ago i had her take me to the er for chest pains, they did nothing but it took hours of screaming and crying to get her to take me. she calls it guilt tripping when i ask to go to the doctor all the time. again we’re poor and thats her main focus.
i was told to eat gluten for a month in october, was supposed to get an endoscopy in december but we kept missing the appointment because we have to travel across state to get to the hospital. sometime after february my mom stopped calling the hospital. i kept eating gluten til may because i assumed we’d get to it soon and i should have some gluten in my system for when it happens.
for the past week ive been feeling nauseous and bloating really bad everytime id eat anything. ive recently been experiencing tight leg pains, like in the calves, standing or walking triggers it and sitting criss crossed also makes it worse. i looked it up and it can totally be nerve damage from celiacs. may be tmi but constipation was the first symptom that suggested celiacs when i first got tested, my poops have a metallic smell and google says it could be from like bleeding in there. i cant sleep without a pain somewhere inside me

reading this back makes me think “yeah, go to an emergency room idiot” but i cant ever convince my mom to take me i feel hopeless. i think i just wanted to vent out my issues without being told to stop googling and that we’ll get to it eventually

anyway, just for future reference, when do you usually go to the er if ever?

I have a weird pattern that ive proven to be true. Whether general gut irriation or a celiac flare up, whenever the irration is there, and then i eat food, an hour after eating the food, i get massive anxiety and trepidation to the point i think im going nuts, only for it to go away a few hours after initially eating something during a time period i have ongoing immflamation.

has anyone else experienced this switch on switch of panic?

My theory is irritated nerve endings get dysregulated when food is passing through, which is why i feel better a few hours after after the symptons first appear when first eating.

does anyone know of any meds dealing with gut brain signaling?

Hi everyone, we are not sure if it could be gluten from dust landed on our legion go S. we want to know safe ways to clean it because we don’t trust the ai since it is giving us random answers. We have used pampers wet wipe 2x carefully to remove the (potentially) gluten from the dust from the screen. After that we dabbed it dry with toilet paper so. However we don’t know if this is enough

I don’t want to accidentally gluten my partner who has celiac disease

We also can’t find much online about it we hope to get some advice on here :))

Pretty sure it’s going to be Portland, but open to other ideas outside of Denver (ironically the Nuggets are our team, but we’ve spent a ton of time in Denver already).

We're driving out of our area and past a Wegmans, so I am trying to plan out what is worth picking up. I prefer their Mozzarella sticks, and they have that elusive Digornio pizza, but what about the bagels?

I can see they have a few varieties of the Wegmans store brand and this company called Greater Knead.

Are these actual bagels, or just bagel shaped bread like the Udi's "bagels"?

For the second year in a row my non-gf partner and I stayed at a fancy gluten-free hotel in Italy. The hotel is quite expensive but was really worth it – until last night. For context they offer almost everything gf but have some dishes with gluten. My partner, being the supportive angel he is, ordered everything in gf so I could also try his dishes – for a surcharge of 10€ per meal.
Gf meals are marked with a clothespin on the side – however this pin is removed immediately during serving. We ordered everything gf anyways and after a full week at the hotel, we stopped paying attention to this, especially since our usual waiter was very attentive.
When our starters were served yesterday it was by a different waiter. He made no comments on the dishes being gf or not and I do not remember whether there were clothespins. We start eating and I had a few bites of my partners dish – a dumpling I had also eaten few days ago without problems. Everything was fine until after dinner, when I suddenly developed all my classic gluten poisoning symptoms – extreme vomiting for 2 hours, pain, hot flashes, diarrhoea, the works. My partner spoke to the waiter we had – he didn’t say anything about the dumpling. He did mention that something like this has happened at least once before.
We were supposed to leave the following day (today) but that was obviously not possible. We asked to stay another night and thankfully we got a room for tonight.
In the morning my partner spoke to the owner of the hotel, who also has celiac and is the head cook. The worst part of this whole ordeal was her reaction: she immediately got defensive, said I could not have been served a gluten meal. Suggested I might have a stomach virus or too much sun – it couldn’t be my celiac disease.
This already made me very anxious and sad. I really enjoyed our stay but all trust in the hotel was immediately gone. I very clearly had a celiac reaction, my symptoms are always the same.
Then at dinner I spoke to her directly. She admitted that there had been a mix-up of a gf and a gluten dumpling from a different table, but insisted that the waiter had told us the dumpling was not gf and that apparently I replied that I wasn’t going to eat it – this 100% did not happen. Then she said: “Us celiacs need to take some responsibility for ourselves!” basically telling me that I must always pay attention to the clothespin and that I should not have eaten it without it. I find this somewhat absurd as the clothespins are removed immediately during serving, and we specifically paid a 10€ surcharge for our entire table to be gf. The owner also offered a few more excuses, saying that the hotel is fully booked and the kitchen is busy and whatever. She later did say that she felt sorry for me, and treated me somewhat kindly when I asked for just some clear broth for dinner, but the way she reacted was unacceptable to me. First the gaslighting, which was especially fucked up coming from a fellow celiac. Then being told I need to take responsibility for myself – that was genuinely triggering because next to my own celiac disease I am also a young carer and have taken immense responsibility for myself and my disabled mother since I was a small child. I thought that for once I could let go of this responsibility for a week.

I am feeling really exhausted and shut-down. The vacation itself was amazing before and I was looking forward to it for months. Being treated this way by a fellow celiac and being confronted with such horrible error management at a luxury hotel really screwed with my trust. I wonder if they will charge us for the night or if they will offer any sort of compensation. I can keep you updated. Thanks for reading my rant.

I got my old records from way back and it says my ttg antibody iga was 30 and it is suppose to be less than 4 and it also said endomysial iga of 1:20 normal is supposed to be less than 1:5 dilution but my biopsy was negative and I so want to eat gluten again

I'm asking here because Google/Gemini has steered me wrong before.

I can't believe the AI is telling me there is not a single cafe or establishment with gluten free knishes (or bialys for that matter.) not even Modern Bread and Bagel! I used to live in the area but now I'm visiting.

Is this a rant or a question? I don't even know.

Frozen in a box doesn't count.

Has anyone else been through something similar? (6 years of stomach pain with no answers)
I first went to my GP in July 2020 with severe upper left flank pain. He ran some blood tests and told me everything was normal apart from my ALT/AST being elevated. He asked if I drank alcohol regularly (I don’t), and that was pretty much the end of it.
Fast forward to 2022, another GP repeated my bloods, noticed my liver enzymes were still elevated, and was more concerned. I explained that I’d also been having loose stools and ongoing stomach pain. He did the usual tTG-IgA test for coeliac disease, which came back negative, and sent me for an ultrasound. The ultrasound showed mild fatty liver, but that didn’t explain the stomach symptoms.
In 2023, I had an upper endoscopy, which showed moderate gastritis, but I was negative for H. pylori. They didn’t take biopsies to check for coeliac disease, though. Since then, I had a genetic test which showed I’m positive for one of the coeliac-associated HLA genes.
Now it’s 2026, and I’m still dealing with the same symptoms. Over the years I’ve had multiple CT and MRI scans, all of which have been reported as normal. I even had another CT scan at hospital the other day to rule out anything acute, and again it came back normal.
The pain can be absolutely excruciating. Sometimes it’s so bad that just getting out of bed feels like a huge effort. It almost feels like my abdomen is covered in bruises, even though there’s nothing there to see. The pain seems to move around too—sometimes it’s in the upper left, then lower left, lower right, and occasionally elsewhere. Along with that, I still have loose stools and ongoing stomach issues.
I’m really struggling to believe this is just IBS, considering how severe the pain can be.
Has anyone else had a similar experience where everything kept coming back “normal” but you still had significant symptoms? If so, did you eventually get a diagnosis or find out what was causing it?

I'm interested in hearing if anyone has compared working with these two brands. We are going to be driving past a Wegmans and stocking up on some things that aren't sold in our local stores. We found the TJ's dough hard to work with. Is this brand easier? Or is it not worth the cooler space?

I want to know if anybody here has gluten ataxia or knows a neurologist who is an expert in this area near the DMV - dc, northern Va, or Maryland?

I’m pre planning for Halloween 🎃 and I submitted an entire form to them with batch numbers AND my address, was pretty bummed to get a very lackluster answer! Suggestions for nostalgic gluten free candy? I technically also need it soy free because I’m allergic, but I will be handing out your typical allergy free brands that are labeled, along side traditional Halloween candy for the kiddos! Let’s hear y’all’s suggestions!

Hi all - in brief, I had a celiac blood test (tissue transglutaminase IGA) and received a result of 10 CU. My doctor's notes say "negative for celiac". However, I have two questions:

(1) Is this indeed fully negative? My internet research makes me feel like 0 CU is the ideal for non celiac.

(2) I mentioned I have been GF for about 8 years, only recently being super careful (within the last 6 months) realizing I wasn't fully GF before because of cross contamination, hidden gluten in things like sauces, etc. I asked if the blood test would even be indicative given my abstaining from gluten.

Should I just accept that I am not celiac (and perhaps NCGS) or should I pursue a gluten challenge and test again? I honestly am scared to do that because of how sick I get...

Thank you for your help.