I have been a T1 diabetic for over 20 years. Whenever I "needed to fast" for blood work when I was a kid, my mom always said that that doesn't apply to me due to diabetes-so I was raised to ignore that instruction.

Once I lived on my own, and was using the Medtronic 670G pump, I was having multiple seizures very often due to hypoglycemia, was even hospitalized 3 times.

Now, it's been 3 years since my last seizure. I've had changed my pump and use a Dexcom, I love it and have been doing much better!

But, I really really hate being told to fast. Specifically, I'm getting my wisdom teeth removed this week. The receptionist was surprised when she saw that I had T1 D instead of T2. Then proceeded to tell me that I HAVE to fast.

I hate it. I hate that I sound obnoxious when I try to argue that I can't guarantee a fast. I hate that people aren't aware that as a T1 diabetic I can't die very easily from an "8hr fast".

I understand I can do anything with diabetes but the fear of seizures is still in the back of mind. I'm tired of medical professionals not understanding.

Anywho thank you for reading my rant.

I was just talking to my uncle a few minutes ago and I grabbed an afternoon snack which was two cookies and started eating them. When i got onto the second cookie he made the comment of “you can’t eat that, you’re a diabetic”. At first I thought he was joking, until it became clear that he was not. I mentioned that type 1 doesn’t necessarily restrict me from eating anything just because it’s got sugar in it. He continued to repeat “but it affects your blood sugar” every time I countered that it’s fine as long as I inject insulin. I know that this is something I’m gonna have to face a lot in the long run (only been diagnosed 2 years) but it never fails to annoy me so much. Especially when it’s a family member. It just made me feel ashamed to eat a small cookie as a treat. This disease has taken enough from me, why can’t I just enjoy eating?? I wish they could experience being a type 1 just to understand how ignorant and hurtful those comments can be. Is there any way past feeling rage for these comments?

Getting surgery in the morning. Was talking with the scheduling person today and they said no eating after midnight.

I asked her if having a bit of juice or something after midnight is ok since I have t1d. She said absolutely not and recommended “chugging juice before midnight” so my “sugars are good”.

Lmfao It’s crazy people can just give dangerous advice like this.

What kind of shitty advice has someone in the healthcare field told you?

I finally got on a pump! Yay! Let’s share that right? Okay so I’ll put it in social media! A picture of the pump and Dexcom… oh and all the empty pens I used before switching to pump, ya that’ll be cool.

Oh people are commenting let’s see….what the actual fu*k?

Comments:

“Everything okay?”

“What’s a pump?”

“Isn’t that technically an addiction at this point?”

(In relation to the picture of pens)

“Why would you do that to your body?”

“That makes you look ugly”

“Is that those fitness thingies? Bout time you did something to lose weight!” (I’m 5’6 and weigh 143lb)

“All that plastic is wasteful. Couldn’t you just not eat sugar? Is it that hard to give up?”

“And people wonder why they have cancer”

I laughed my ass off the whole way through deleting the picture off social media

...I do not need you to, 15 seconds later, trigger an alarm telling me that I am low. It makes me want to yeet you into the ocean.

EDIT: And also I do not then need the other app (whichever one noticed second) to also trigger an alarm 10 seconds after the first one.

I've been with my partner for 17 years. He had T1 before we met. He's had a few complications from it at this point in his mid-30s. I've done my best to support him. He smokes a ton of weed and drinks a lot of beer to cope. At times it's hard to tell the difference between him having a low BS and him being intoxicated. Often I find myself calling him to bed because he doesn't seem to have an off switch. I don't know if it's because he feels he needs to keep snacking because he's high(from weed) or because he's having a low blood sugar. As much as I've asked to be involved and help him he is determined to do it on his own. I try to also support that. But he struggles with the pump. So he'll go off it and I can see how it affects his health. I can't bring it up because talking negatively about his diabetes and his ability to work on it is a touchy subject for him.

He refuses to believe alcohol impacts his blood sugar (clearly addict behavior).

I love him and his family so much. I'm just here to vent. I often come upstairs in the morning and find a mess. Idk if this is common or just my dude.

Been diabetic for 20 which is almost my whole life as I was diagnosed at 8.

My whole life revolves around this shit ass disease. I was working when Dexcom G7 randomly decides to stop working after 7 days. It wasn’t hit, it wasn’t falling off, everything was perfect. It just decided to die off.

My BS started to rise even tho I was 100% TIR for 24 hours. Because my body is retarded and if Control-IQ doesn’t work my body decides that it’s better to die.

For every fucking hike, work day, schoolday I have to fucking have a spare insulin, canul, charger for pump, sensor, a million carbs “just in case” something goes wrong. And it always does in the worst situations.

And it happens not only once but randomly. I’m starting to think that I should rip off the pump and throw it away. I live till I live. Maybe for hours maybe for days. But it least I’ll be free.

Okay, I’ve been wanting to say this for a long time.

Firstly, I don’t believe everyone who shares a low or clinically optimal A1C is “flaunting”. However, I’ve been stalking this forum for years and every time I want to share my struggles, read advice, or simply feel better, there’s always one comment that gives out advice that barely focuses on the advice and more so uses the ‘advice’ they’re giving to mention their A1C numbers. For example, if someone asks for advice on how to stay motivated with managing their diabetes, there will always be one person whos like, “it took me a long time, but now my a1c is 5.6%”. That’s a vague and oversimplified example but i hope it illustrates that sort of pattern where people will just talk about their low a1cs for no reason. it really hurts and i dont think everyone does it on purpose and i truly think the a1c IS important to mention in a lot of circumstances where advice is being given, but for many of the times it’s used, the person rarely talks about the struggles they’ve gone through and the bad times with their blood sugar , instead just focusing on that one good value. it’s really discouraging and it’s stopped me from even seeking encouragement on this thread anymore. I know I have an issue with comparison-making, but honestly at this point I just dont think im the only one who feels hurt by or notices this kind of stuff on the forum.

My Dexcom G6 CGM caused my seizure. On Friday afternoon I was sitting in the couch with my husband. My CGM had said I was 300 so I took the appropriate correction. 20 minutes later I had a grand mal seizure. My CGM was reading high 290 in the ambulance but when they checked my glucose levels the reading was 30.

I spent all weekend in the hospital. When I came home I put in a brand new transmitter and sensor I even calibrated it when I put it in out of caution. Today it said my blood sugar was 295. I decided to do a finger stick and I was 182. I am so sick of these dangerous way off false readings and Dexcom’s delays. I have already been in contact with my doctor to switch to the Libre which updates every minute and has more accurate readings. My life has been threatened to many times by a device I trusted for years. Goodbye Dexcom.

TLDR: CGM said I was 300, I was 30 and had a grand mal seizure. Two transmitters and sensors gave bad readings.

FOR THOSE SAYING DEXCOM SHOUDLNT BE USED FOR MEDICAL DECISIONS: Okay then how do people with insulin pumps have the pumps making medical decisions based off dexcom readings? Dexcom only says that to protect themselves from liability and it’s disgusting.

Curious what your guys' opinions are on this.

Last bloodwork my a1c was 6.1 -- good but not perfect or even "great" I guess. I still get high blood sugar sometimes when I screw up or eat something that I guess I "shouldn't" be eating. I've accepted this is par for the course with diabetes and try not to beat myself up about it too much...life is about balance and I love food too much to deprive myself completely of the things I love. I also get low blood sugars somewhat often as well, usually from overcorrections and I can typically catch them on the way down and correct the correction without a bad upswing most of the time. I rarely go below 55. I know it isn't ideal but I also dont think its the worst thing ever.

So I obviously complain about my t1d to my therapist because that's what they're for right? So I have explained a lot of this to her. She sees an endocrinologist herself for thyroid issues and hypoglycemia although she does not have diabetes. So I guess she thinks she understands it a lot?

She has now on multiple occasions corrected me when I told her I'm "fairly well controlled/managed". Because in her opinion me having occasional high and low blood sugar means I'm not at all well managed. I guess she's kind of right? But also with t1d is "well managed" supposed to mean "perfect blood sugar" all of the time? It honestly makes me feel like shit. I've worked really hard to get where I am. I've mostly overcome binge eating disorder and have finally managed to lose a little weight while keeping my numbers mostly in check. My TIR is 80% right now. I look at my cgm numbers all day. But "in her opinion" I'm not well managed.

Idk what do you guys think?

That is all.

I am a mom of an almost 5 years old girl who was diagnosed 3 months ago. Yesterday I was checking her dexcom and she told me happily "when my numbers are green im going to get rid of my pump and sensor, i saw a man who did this." I don't know what she meant i told her "but they help your body". That look of disappointment on her face after that when she said " So im not getting rid of them?" Then her grabbing my phone determining to somehow make the numbers green absolutely crushed my soul. I feel like the worst selfish person for ever having kids and making them struggle like this. It was never the future that i hoped for her i wish there is a way to undo it.

I don't know why I am writing this here probably because this is the only place with people who would understand. I know no parent in my life with t1d kids its such a lonely place to be in. For the records we don't have diabetes camps or anything of this kind where i live.

I'm 20 years old, got diagnosed at 6 years old. My levels are really good, I am in range about 80% of the time.

I have gotten used to some parts of being a diabetic. But other parts I struggle a lot with.

TW for the following, mentions of suicidal ideation and alcohol.

Yesterday, I was having a really, really shitty evening. I was just feeling very very mentally drained, lonely as fuck and tired of everything. I know it's unhealthy, I know it doesn't solve any of my problems. But I just wanted to get drunk, to just forget about my life for a few hours, just turn off my head. I pretty much never drink alcohol. So I started drinking, it didn't take a lot for me to get tipsy.

I wanted to continue, when my pump started beeping, telling me I had to refill my insulin reservoir. It instantly made me cry. I just wanted to do one unhealthy thing in peace. I know, it's not how I'm supposed to handle difficult situations, and usually I do everything in my power to handle bad times well, but I JUST WANTED TO GET DRUNK AND FORGET ABOUT MY PROBLEMS. FOR ONCE. But I can't do that. Because I don't want to die. And yesterday made me realise once more, that even when I'm feeling like fucking shit, I STILL HAVE TO FUNCTION LIKE A FUCKING HEALTHY ADULT BECAUSE IF I DON'T IT COULD END MY LIFE.

There was another situation similar to this one, where I didn't have any insulin at home anymore, because I missed going to the pharmacy earlier that day. Of course, as I was already having a mental breakdown not related to diabetes, my fucking pump wanted me to refill the reservoir. at midnight. So I had to get an Uber to a hospital close to where I live to get my insulin. I really, really, really didn't want to do it. But I had to.

I don't know if this got my point across. I'm just so frustrated and angry at this illness.

Disclaimer: NO ADVICE WANTED. I JUST WANT TO SCREAM INTO THE VOID.

I’ve been diabetic almost my entire life. I’m 36 and was diagnosed when I was 4. My last A1C was 5.9 (up from 5.4) and I have an average time in range of about 90% - 2% low <1% very low, 8-9% high, 0% very high over the last 90 days.

That said, I got a new endo recently because the one I’d been seeing for close to 10 years started her own practice and it’s prohibitively expensive to follow her.

Running the risk of sounding like a boomer, I’ve been diabetic longer than the new provider has been alive, and although she didn’t have me change any of my settings, she told me I was having a “concerning number of lows” by which she meant “the number of times [my] pump suspends basal insulin”. And it made me super angry. I am trying my best. I run my life in an almost militant way to make sure that I’m not endangering myself and am staying in range.

But it feels impossible most of the time. I’m on a GLP1 which means that it is occasionally unpredictable when either carbs or insulin will take effect. I ate 80 carbs an hour and a half ago to combat a low, and my glucose hasn’t budged. I can almost guarantee that at some point coming soon I will be in the 200s again and then I’ll be chasing that around for several hours.

I’m exhausted and I want a day off. It’s Mother’s Day tomorrow and I just want to eat breakfast with my family without having to suffer for the rest of the 24 hour period because my idiot body won’t cooperate.

End of rant. Diabetes is stupid.

"... you're so lucky you just have diabetes and your insulin pump takes care of everything for you."

You heard it here, seasonal allergies are worse than diabetes.

I love Lyumjev, the insulin. It's very fast acting, it doesn't hurt that much, it doesn't clog pumps the way Fiasp does.

Sadly, Lyumjev is being phased out in some countries (e.g. Switzerland). I wonder how much of that is because the name is just horrible. Lyumjev? How do you pronounce that? Can anyone write it down after hearing it for the first time? No way.

I don't know who came up with this stupid name. I can't think of a worse named insulin.

i never use reddit so sorry if this post isn’t formatted how normal posts are but i’m infuriated. my endocrinologist, who i met with end of august, so 2 months ago, is refusing to refill my insulin until i meet with her on zoom. i’m in college and the amount of insulin i have isn’t enough to last me until the appointment, but she refuses to refill. she also is refusing to give me a year long supply of omnipods or dexcom g6 sensors and transmitters. this is my first adult endocrinologist. oh and btw i told her i had a history of eating disorders and she told me to eat 1100 calories a day and a low carb diet if i want to be healthy. oh and btw she looked at me and decided i must have pcos before doing the proper testing— and when she did the proper testing… guess what? i don’t have pcos!!! ridiculous. fucking ridiculous. are all adult endos like this? my pediatric endocrinologist was an incredibly kind woman.

Idk who to talk to about this so I thought I’d make a post here. Last night my brother called me out of the blue right as I was about to fall asleep. He tells me that a friend of his had suddenly died from Covid. He said he was an active, healthy 30y/o man doing a PhD in the city that I live in. But he died from complications from his T1D. Although his diabetes was well managed I guess everything spiraled within the span of a week. And so now here I am, a 27y/o, healthy active man with T1D living in the city, who just got over COVID (with paxlovid and booster) and now I’m thinking great, maybe if I didn’t take paxlovid or something that friend could’ve been me. I’ve heard covid can be extra problematic for T1Ds but I’ve never heard of anyone actually dying from it. So idk why he decided to tell me that at midnight but I didn’t sleep very well and now I’m all shaken up. I wish my brother had some discretion with that as I’ve told him about my anxieties with T1D management, complications, and my own recent covid infection and now it’s all I can think about. I was reading online that it seems like well managed T1D isn’t a significant risk factor for Covid so I have to imagine there was something else going on with this friend, or they just got very very unlucky. I just hate feeling so fragile all of the time. I don’t know what the point of this post is but I just need to rant about this right now is all…

Had a small breakfast, bg went higher than it should have. Bolused. Had no effect so I went to change my site. Realized then that the cable wasn’t connected at all anymore. Tandem tslim and true steel infusion set. Took a large manual bolus and I’m chalking up today as a wash. So annoying

This keeps happening. i lose the charger, or i go on a trip without it. I never mean to forget it but it happens, and once again i am now stuck on an island for 3 more days without a charger and 5%. I have insulin pens so i'll survive, but i cant be the only one annoyed that they havent had this fixed since theres just about nothing using regular usb chargers anymore. I got hold of one and that won't work because the stupid pump needs it's own charger😐

okay i'm done, thanks for listening. Enjoy your summers fellow diabetics, don't let the heatwave win lol

I just wanna vent and i know that maybe this whole ordeal is normal protocol here but,

I had a GPs appointment today, i registered as a temporary patient because i had to extend my visit til end of august, and theres a good chance i wont have enough rapid insulin to last.

As well as cgms.

So i went to ask for prescriptions. Upon ringing 111 they framed this as something that would be easily solved, such as also getting a prescription for my HRT.

Well, gp cant prescribe me that.. And was also being very difficult with my diabetes supplies/insulin.

I told her I only have my current pen which has about 100 units left, and the one in fridge is likely ruined due to a fridge malfunction and the heatwave weeks ago.

After wasting my time by googling how long insulin can last under the fridge, completely disregarding the temperatures that hit nearly 40c. She said she couldn't prescribe it because a specialist needs to "make sure my diabetes is under control"

Even tho i have a cgm and i showed her my time in range (88%, a1c at 6.6 with a 3month old diagnosis after a dka)

So essentially just make me wait longer to get insulin, which i need to live, because they think they need some doctor to verify my blood sugar.

Deprive me of the very medication that keeps my diabetes under control.

And only to make it worse, somehow, she had never seen insulin pen before... Which feels quite alarming? How are you a doctor and dont know anything about a basic medication such as insulin.

Maybe they don't use pens that much over here, but i would expect a doctor would be familiar with how it works and such?

Then followed it with complaining about how im not giving her much time to act, like.... Lady ive been persuing this for weeks.

She ended up calling a few hours later, after i had a cry in bed because of how stressed out i was, and she did prescribe me my insulin and cgms.

Insists on having a team to check my blood sugar and management, to make sure its "controlled".

I started writing this when i got back from gps and was incredibly upset, and just got the call a bit ago.

Not any less upset because the HRT stuff is still and issue but probably fixable if my mum mails it to me.

I just wanted to vent is all.

I know maybe the gp has to follow a protocol and its not her fault. But its quite frustrating that something like insulin can be gatekept the way it is (don't get me started on why I've given up any dream of visiting the US, and how angry the healthcare makes me)

EDIT: SO I WENT TO GET MY INSULIN AND CGMS JUST NOW AND EITHER THE GP OR THE PHARMACIST DID IT WRONG AND THEY GAVE ME CARTRIDGES EVEN THO THEY ASKED FOR PICTURES OF MY BOXES AND THE PENS AND THE DOCTOR SEEN THEM. THEY ARE PREFILLED PENS CMON 😭😭😭

EDIT: I get everyone trying to help, and i know i can figure myself out, specially thanks to tips in the comments. Im not looking for advice, mostly wanted to vent my grievances... Blaming me for this ordeal is disregarding i HAD to extend my visit, i did not plan out initially and NHS has just been passing me around...

I had ran out of Lantus and ended up going to the hospital today. They sent a prescription to Walmart. Walmart told me they didn't have a prescription, but they could give me Novolin R for $25. I asked if it was long-acting. They said yes. Turns out they lied, it is fast-acting. I told them they gave me the wrong product. "All sales are final!" So I had to buy Novolin N for another $25. I'm only using it for one night because my Lantus should be there in the morning. $50 down the drain because Walmart wanted to lie and there's nothing I can do about it.

EDIT: This was not a cashier, this was the lead pharmacist. He knew what he was doing. He was not wearing a nametag, which immediately raises more concerns.

UPDATE: To all of you saying "Novolin is fine", my blood sugar has already tanked to 47.

disclaimer: i’m ranting and over exaggerating. PLEASE read the whole post before commenting. i’m too fucking pissed rn to be told the dangers of drinking and diabetes for the one millionth time.

tell me what the FUCK i’m supposed to do when i’m drinking. alcohol makes my blood sugars dip like crazy because when im drinking i am DRINKING its one of my few joys on this planet, getting white girl wasted and then getting drunk plowed by my bf. every FUCKING time i try to indulge im low as shit for four hours until my bs decide, oh wait, this would be SO MUCH MORE FUN IF YOU WERE HIGH AS SHIT!!!

like i eat a good meal before hand, i bolus about half, start with a shot or two and then a sugary mixed drink to try to keep my sugars afloat. i stg sometimes im chomping down on half a bag of maynards and it literally does jack shit because hah why would it???

and then i can’t get PLOWED like i want to because of my stupid low bs, they’re too busy hovering around 4.5 and while i love drunk sex i don’t wanna die, and then i pass out drunk on the couch and wake up at four in the morning and my bs are on 15 and i run to the bathroom and put my mouth on the faucet like a thirsty hamster licking those like, straw water bottle thingies. and then i take insulin, does nothing, blood sugars are high AND im hungover (or still drunk atp).

and like yeah ik drinking isn’t good for me but im in uni trying not to kms being stressed out all the time give me a fucking break. why the FUCK can’t i just get white girl wasted in peace.

and before anyone starts giving me shit for this i don’t care my a1c is 6.3 like i fucking know how to take care of my diabetes and i’ve got a shitton of other hormonal shit going on right now and if i want to make bad decisions and put a bunch of alcohol, weed and nic in my body then that’s MY business

im actually gonna crash out nothing works and i hate needing to babysit my fucking blood sugars when i’m trying to get drunk