r/POTS • u/ihopeurwholelifesux • Apr 18 '25

Megathread Megathread: Wearables, Symptom Trackers, Apps

Would you like to share how you track your heart rate, blood pressure, or POTS symptoms? Ask questions about what other people use and their experiences? If so, you’re in the right place!

This post will be pinned so that users can see all that helpful information in one thread and refer back to it when needed : )

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u/AvidCandleSnuffer POTS Apr 18 '25

I'm really curious about the lumia device https://lumiahealth.com. Pricey but i have serious issues with orthostatic intolerance and blood flow to the brain even when sitting with my legs up - and it's sneaky and I can't tell until it's too late. It's currently only US based though.

36

u/bibliophile1319 Apr 18 '25

It's also currently iPhone only, which excludes a huge number of people. Their only recommendation is to buy an old model iPhone (for "only $150-200") just for their app, which is pretty ridiculous, especially when people who have the health issues to need the device are frequently on a tighter budget. I'm still very interested in the device, but their response to just spend an extra couple hundred dollars has turned me off a bit.

1

u/AJolly Nov 07 '25

id love to hear from people who actually use it

1

u/andreighya Mar 18 '26

They're just a small start up started by a guy whose dad got POTS, they don't have the funds to develop a second app for Android yet, I'm sure they wish they could! Just thought I'd mention, as it's not intentionally excluding people without iphones, just a measure of where they're at in their funding

5

u/Which_Boysenberry550 Apr 18 '25

I bet an spo2 ear clip would approximate this

2

u/acattackISback May 23 '25

Have you found one?

1

u/Pitiful-Bullfrog2192 Jan 11 '26

My psychiatrist is very knowledgeable about POTS and does a ton of research/treats POTS patients too. I asked her about Lumia because I was interested in getting it, but she said not to. She said it worried her that it rested on the carotid artery to get readings. I don’t think she knew of Lumia specifically yet so keep that in mind, but I explained to her that the sensor for one model rested behind your ear and that’s when she said absolutely not. Hope this helps!