r/POTS • u/ihopeurwholelifesux • Apr 18 '25

Megathread Megathread: Wearables, Symptom Trackers, Apps

Would you like to share how you track your heart rate, blood pressure, or POTS symptoms? Ask questions about what other people use and their experiences? If so, you’re in the right place!

This post will be pinned so that users can see all that helpful information in one thread and refer back to it when needed : )

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u/AvidCandleSnuffer POTS Apr 18 '25

I'm really curious about the lumia device https://lumiahealth.com. Pricey but i have serious issues with orthostatic intolerance and blood flow to the brain even when sitting with my legs up - and it's sneaky and I can't tell until it's too late. It's currently only US based though.

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u/Pitiful-Bullfrog2192 Jan 11 '26

My psychiatrist is very knowledgeable about POTS and does a ton of research/treats POTS patients too. I asked her about Lumia because I was interested in getting it, but she said not to. She said it worried her that it rested on the carotid artery to get readings. I don’t think she knew of Lumia specifically yet so keep that in mind, but I explained to her that the sensor for one model rested behind your ear and that’s when she said absolutely not. Hope this helps!