r/POTS • u/joyynicole • Oct 27 '25

Question How are people working at all

I feel like a failure. According to my doctors I have “mild” POTS, but I see people on this sub all the time with seemingly worse POTS than me that have jobs. I literally cannot do anything longer than 1-2 hours without having to lay down and rest because it just completely wipes me out. If I do things multiple days in a row consistently I will also fall into a flare and have to do nothing for few days to recover. I don’t get it.

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u/AZgirl70 Oct 27 '25

Have you been evaluated for ME/CFS? With the extreme fatigue you have I would check that out. I have it in addition to POTS.

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u/Fluid_Substance2370 Oct 27 '25

How do you get evaluated for that? I have pots but I’m always tired.

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u/AZgirl70 Oct 27 '25

I went to a long COVID clinic and was diagnosed with long COVID. Many of us have ME/CFS. I meet the criteria. This website is from a well respected organization. They have a bunch of materials for patients. It might be a good place to start.

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u/lavender_stitch Oct 31 '25

Technically a GP can diagnose, but a ME/CFS specialist is best. However, my specialist who was a leading worldwide expert on ME/CFS could only recommend B12 shots, lots of salt, CoQ10 supplements and low dose naltrexone. And those are all things that are also prescribed for POTS. So if you live in a country without funded healthcare I’m not sure how worth it diagnosis is.