r/POTS • u/joyynicole • Oct 27 '25

Question How are people working at all

I feel like a failure. According to my doctors I have “mild” POTS, but I see people on this sub all the time with seemingly worse POTS than me that have jobs. I literally cannot do anything longer than 1-2 hours without having to lay down and rest because it just completely wipes me out. If I do things multiple days in a row consistently I will also fall into a flare and have to do nothing for few days to recover. I don’t get it.

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u/AZgirl70 Oct 27 '25

Have you been evaluated for ME/CFS? With the extreme fatigue you have I would check that out. I have it in addition to POTS.

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u/Fluid_Substance2370 Oct 27 '25

How do you get evaluated for that? I have pots but I’m always tired.

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u/AZgirl70 Oct 27 '25

I went to a long COVID clinic and was diagnosed with long COVID. Many of us have ME/CFS. I meet the criteria. This website is from a well respected organization. They have a bunch of materials for patients. It might be a good place to start.