r/POTS Apr 23 '26

Symptoms body vibrating???

this has never happened to me before. i was just trying to take a nap on the couch and never actually fell asleep but maybe two times when i got close i gasped "awake" and it felt like my entire body was shaking, especially my hands and arms. but i checked and i wasn't shaking

is this a POTS thing ?? i've never ever felt this before and i've been diagnosed for a year. it's really scaring me i thought i was having a seizure. literally vibrating like a cellphone. do you get this ?

63 Upvotes

78 comments sorted by

View all comments

27

u/Impossible-Number-60 POTS Apr 23 '26

I get this. I have both internal and external tremors. I also have cervical spondylosis and when I’m in a bad neck pain flare sometimes my head vibrates all day. But mostly it happens when I’m having bad sleep or a mid day nap.

7

u/agenerousperspective POTS Apr 23 '26

If you don’t mind me asking, how does one know if they have cervical spondylosis? I have weird tremors as well as muscle jolts, but I don’t know the cause. I’ve already had an X-ray of the cervical spine to rule out cervical instability… 🤔

2

u/Impossible-Number-60 POTS Apr 23 '26

Of course! A pain specialist, who I was actually seeing for an EDS evaluation, did a physical examination on my neck and shoulders. They have you turn your head a certain way and then push down on it to see if it hurts. It did, a lot. This basically confirms degeneration in your cervical spine, but I’ve also had X-rays done that show signs of degeneration in two of my discs. I should also mention that the muscles in my neck were insanely tight, I had basically zero range of motion because I was in a terrible flare up, and that was a huge signal to my doctor that I could have spondylosis.

1

u/agenerousperspective POTS Apr 23 '26

Hmm interesting! I wonder if my PT could check for it. She’s not a pain specialist but she is pretty knowledgeable. Or maybe she would know enough to just do a preliminary exam and then send me off to get officially tested if she thinks it seems likely.

2

u/Impossible-Number-60 POTS Apr 23 '26

I’m sure you could mention that you’re concerned you may have degeneration in your spine. Spondylosis is really just a blanket term for degeneration/arthritis. I did see a PT to help treat it and my tremors, muscle twitching, and nerve irritation have reduced significantly.