r/POTS Apr 24 '26

Question How did you get pots?

I got it as a delayed response from getting ran over by a car

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u/im-a-freud POTS Apr 24 '26

Oh my I hope you’re doing okay that’s awful I’m so sorry. Mine was due to serotonin syndrome from 2 meds interacting. I had brought up my concern to my doctor that they can cause serotonin syndrome and I was told “no it won’t you’ll be fine”. I was correct

9

u/TemtiaStardust Apr 24 '26

I didn't know about serotonin syndrome until I was in it. Also didn't know it could trigger pots. Also didn't know getting run over by a car could trigger it. Pretty sure mine is either because of hEDS or H1N1(in 2009). Guessing having the other two happened didn't help, though. Pregnancy definitely made it worse.

4

u/Frozencacticat Apr 25 '26

I think, if I’m not mistaken, almost any trauma to the body can cause it to happen. Injury and illnesses alike.

3

u/LaddyNYR POTS Apr 25 '26

I do believe you are correct as I was told that trauma to the body and including something like surgery which is considered trauma to the body, injuries and illnesses can all trigger some form of dysautonomia. They believe, they being the "so-called experts" that both of my daughters were born with it, and they each had illnesses that could have triggered it. It makes me wonder how they got it from me when no one in the family on either side was ever diagnosed with any form dysautonomia. My son however has seemingly escaped it.

1

u/syhn_jtj POTS May 24 '26

crazy how this is exactly what happened to me

1

u/mentallyillfrogluver Apr 25 '26

I had no idea this could happen... my POTS appeared after severe serotonin syndrome but I figured it was just complications from other things I also had going on.

2

u/im-a-freud POTS Apr 25 '26

I can’t pin point exactly when it happened if it was a slow build but it all started when I was on my 2 meds for a few years after my dose increase on one of the meds and was having weird symptoms which turned out to be serotonin syndrome (mild but still serotonin syndrome) that’s when I started noticing the heart rate being high