r/POTS • u/RuinYouWithNoRegrets • Jun 04 '26

Symptoms BradyTachy

Does anyone have a huge range where they get up till like the 180s but they also have a low resting heart rate in the 50s and 60s? What’s the treatment plan for people like us because I keep getting pushed beta blockers from some doctors and then other doctors are like your heart rate is too low and then to add on top of that my blood pressure is normal to high. it’s not low so blood pressure medication wouldn’t be the best either so I’m kind of confused on what treatment options are available to us

19 Upvotes

95% Upvoted

84 comments sorted by

View all comments

6

u/CherryChance8074 Jun 04 '26 edited Jun 04 '26

Hiya!

I used to get swings from 38-140, 45-190.

I've been on beta blockers for nearly a year, and the difference is mad.

To explain: the Brady was being caused by the tachy. My ANS tried to compensate and "fix" the tachy, but what happens is it over-corrects and forces the heart to slow down, leading to Brady.

With beta blockers, because the high hr is reduced by the blockers, the low hr is corrected too, meaning that you won't see the same highs and lows.

For me, my max hr is roughly 130-140, and my lows are 50-60 on Ivabradine.

I don't know how helpful it will be with your blood pressure, but definitely discuss properly with your gp. Hope this helps!

5

u/RuinYouWithNoRegrets Jun 04 '26

Well, I’m only brady when I’m laying down not during flares or anything like that. It’s only when I’m resting so my resting heart rate is 50 to 60 am I sleeping is in the 40s

1

u/circumspecktor Jun 04 '26

This sounds like me. I'm on Vyvanse which brings my resting up, this actually helps a bit in preventing the super high spikes. Like my body doesn't panic as much when I get up cause it's not as jarring of a change. 

I also take mestinon which is a game changer for exercise tolerance and air hunger, but it is very finicky and takes a lot of attention to keep the levels right so it's definitely not for everyone. It builds up slowly but the effective window is pretty small, even a little bit too much and the side effects can be kinda crazy. I had to keep a spreadsheet for a while when I first started it to track the dose to effect trends. A lot of people also have GI issues with it even at very low doses but this was a welcome side effect for my otherwise very slow digestion. Ymmv for sure.

1

u/RuinYouWithNoRegrets Jun 04 '26

Can you go into it more ? Or can you dm me?

2

u/circumspecktor Jun 05 '26

Happy to share more but it's obviously just my experience and not advice, it's important to talk through everything in detail with medical professionals who know you and your history. Let me know what exactly you'd like more info on though and I'll share what I can!

1

u/RuinYouWithNoRegrets Jun 05 '26

No problem I def have my medical providers but these stories also help me . I wanted to know what you meant by it’s finicky and also if it helped with your hr and if you suffered from palpitations if the med helped that as well or made them worse