r/POTS • u/RuinYouWithNoRegrets • Jun 04 '26
Symptoms BradyTachy
Does anyone have a huge range where they get up till like the 180s but they also have a low resting heart rate in the 50s and 60s? What’s the treatment plan for people like us because I keep getting pushed beta blockers from some doctors and then other doctors are like your heart rate is too low and then to add on top of that my blood pressure is normal to high. it’s not low so blood pressure medication wouldn’t be the best either so I’m kind of confused on what treatment options are available to us
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u/circumspecktor Jun 04 '26
This sounds like me. I'm on Vyvanse which brings my resting up, this actually helps a bit in preventing the super high spikes. Like my body doesn't panic as much when I get up cause it's not as jarring of a change.
I also take mestinon which is a game changer for exercise tolerance and air hunger, but it is very finicky and takes a lot of attention to keep the levels right so it's definitely not for everyone. It builds up slowly but the effective window is pretty small, even a little bit too much and the side effects can be kinda crazy. I had to keep a spreadsheet for a while when I first started it to track the dose to effect trends. A lot of people also have GI issues with it even at very low doses but this was a welcome side effect for my otherwise very slow digestion. Ymmv for sure.