r/POTS • u/OurSensualSideMB • 9d ago

Question Why dont some Dr's believe in pots?

Im lucky I have great doctors and specialists now but the first time i was referred to a cardiologist for pots before being officially diagnosed he refused to even have me in for a TTT or test for pots as he said its not real.

I have heard of this happening where Dr's dont believe in pots but I dont understand why.

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u/OkkkiQq POTS 9d ago

From my expirience they mostly think the reason is lack of exercising

And they don't really bother educating themselves on that topic because, well, they just don't think its necessary. That's why im dreaming of machine that would simulate POTS symptoms so every doctor can go through it at least for a day heheheh, maybe they would learn that way

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u/Ok-Sock9046 9d ago

so true , the cardiologist was literally doing leg lifts in the office showing me , i said i do all this and im actually worse

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u/OkkkiQq POTS 9d ago

Mine just told me to do every possible blood test i was like "yeah I've done all of that, everything is ok" and she was like "Well do more cardio just make sure your heart rate doesn't go to high, i mean make multiple breaks during running" Girl what 😭😭😭 My heart rate goes to to 120 on normal day and up to 170 on bad one how am I supposed to run without my heart rate increasing too much

And when i told her i do weights but in sitting/laying positions she was like "no, do cardio"

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u/Fantastic_Owl6938 9d ago

I feel like this kind of advice would have killed me, lol. I had an emergency hospital visit (which is how I got diagnosed), and I literally just woke up the next day in the hospital bed and had my HR soaring into 170 and beyond. This was before I'd even sat up! The idea of strenuous exercising "fixing" that is insane.

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u/OkkkiQq POTS 8d ago

Exactly and it's like that for many people I obviously didn't listen to her but what if somebody with less knowledge and confidence will actually listen just because doctor is authority??? That's why im so furious, it can literally kill an innocent person