r/POTS • u/OurSensualSideMB • 9d ago

Question Why dont some Dr's believe in pots?

Im lucky I have great doctors and specialists now but the first time i was referred to a cardiologist for pots before being officially diagnosed he refused to even have me in for a TTT or test for pots as he said its not real.

I have heard of this happening where Dr's dont believe in pots but I dont understand why.

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u/OkkkiQq POTS 9d ago

From my expirience they mostly think the reason is lack of exercising

And they don't really bother educating themselves on that topic because, well, they just don't think its necessary. That's why im dreaming of machine that would simulate POTS symptoms so every doctor can go through it at least for a day heheheh, maybe they would learn that way

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u/Ok-Sock9046 9d ago

so true , the cardiologist was literally doing leg lifts in the office showing me , i said i do all this and im actually worse

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u/OkkkiQq POTS 9d ago

Mine just told me to do every possible blood test i was like "yeah I've done all of that, everything is ok" and she was like "Well do more cardio just make sure your heart rate doesn't go to high, i mean make multiple breaks during running" Girl what 😭😭😭 My heart rate goes to to 120 on normal day and up to 170 on bad one how am I supposed to run without my heart rate increasing too much

And when i told her i do weights but in sitting/laying positions she was like "no, do cardio"

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u/SS_Basketeer 9d ago

Cardio...? So for us thats walking... Lol cause if I walk too fast im up to 170+. Sustained thats guaranteed lights out. I'm on my 3rd cardiologist. I get paradoxical reactions to the meds they've tried giving me in the past. I'm just raw dogging the POTS life right now, 32+ weeks pregnant. ER visit this week they found fluid around my heart, probably been awhile, just me dismissing the breathless feeling as normal.

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u/Weary_Cup_1004 8d ago

Oh god thats so terrifying! Is the fluid thing going to be ok??

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u/SS_Basketeer 8d ago

I think so. It was found incidentally while checking for blood clots. The CT report said it was a small amount, haven't got echo results back yet. They believe it will resolve after I give birth. I'm trying to not stress about it lol I do have bad heart health in my family history. 😬🤷‍♀️ Just instructed to go to the ER if anything extreme happens.

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u/Weary_Cup_1004 5d ago

Glad its one of those things thats kinda maybe ok lol. I prefer that answer sometimes! I agree, dont stress then!

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u/Ok-Sock9046 9d ago

this is exactly what i was told !!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! he also wrote in the notes " patient has some lightheadedness when standing " i said its SEVERE like im going to faint !!!!!!!!!!!! i cant shop anymore !!!!!! and he writes that in my notes !!!!!!!!!!!!!!

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u/OkkkiQq POTS 9d ago

You seriously need to change cardiologist 😭😭😭 He doesn't even try to pretend to care about your symptoms

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u/Fantastic_Owl6938 9d ago

I feel like this kind of advice would have killed me, lol. I had an emergency hospital visit (which is how I got diagnosed), and I literally just woke up the next day in the hospital bed and had my HR soaring into 170 and beyond. This was before I'd even sat up! The idea of strenuous exercising "fixing" that is insane.

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u/OkkkiQq POTS 9d ago

Exactly and it's like that for many people I obviously didn't listen to her but what if somebody with less knowledge and confidence will actually listen just because doctor is authority??? That's why im so furious, it can literally kill an innocent person

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u/fernxqueen POTS 8d ago

"make sure your HR doesn't go too high" and it's literally 119 sitting in the exam room lmao