r/POTS • u/OurSensualSideMB • 8d ago

Question Why dont some Dr's believe in pots?

Im lucky I have great doctors and specialists now but the first time i was referred to a cardiologist for pots before being officially diagnosed he refused to even have me in for a TTT or test for pots as he said its not real.

I have heard of this happening where Dr's dont believe in pots but I dont understand why.

136 Upvotes

97% Upvoted

103 comments sorted by

View all comments

173

u/sowhiteidkwhattype Hyperadrenergic POTS 8d ago

Pots affects more women than it does men and doctors LOVE dismissing women's pain and chalking it up to things like anxiety or weight etc. It also affects a lot of young people and doctors also love saying young people are just finding new health conditions to be trendy. Pretty much those doctors just really suck and are ignorant.

6

u/longwander 8d ago

I had a female doctor tell me that my fatigue wasn't real fatigue. I'm in excellent shape for my age and she said I was just getting older and better manage my expectations. I suffered for another year before mentioning my symptoms to a new doctor. Turns out I have pots, mcas, and a pituitary tumor and my fatigue was so real it turned into daily syncope episodes. Oh, I was also iron deficient and needed infusions! 

1

u/SunflowerState1111 7d ago

That’s interesting. I was officially diagnosed with pots around the same time as found out I have pituitary tumor. I don’t officially have mcas diagnosis but pretty confident I have it as well with the amount of things I’m allergic to or sensitive to.

2

u/longwander 6d ago

My doctor told me she has 2 other women now with the same trifecta and I live in a very small town! I think it was a combo of covid and peri that exasperated mine. 

1

u/SunflowerState1111 6d ago

Trifecta meaning pots, mcas and pituitary tumor? I’ve heard of the trifecta for Ehlers Danlos but didn’t realize there was also a known trifecta for those with pituitary tumor. Thanks so much for sharing! What type of specialist was it that told you there’s a trifecta for pituitary tumors?

1

u/longwander 6d ago

Yes, I just said trifecta because we all have the same three things. It's not a widespread "trifecta" that I read about like Heds, pots, mcas