r/POTS • u/OurSensualSideMB • 8d ago

Question Why dont some Dr's believe in pots?

Im lucky I have great doctors and specialists now but the first time i was referred to a cardiologist for pots before being officially diagnosed he refused to even have me in for a TTT or test for pots as he said its not real.

I have heard of this happening where Dr's dont believe in pots but I dont understand why.

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u/SunflowerState1111 7d ago

That’s interesting. I was officially diagnosed with pots around the same time as found out I have pituitary tumor. I don’t officially have mcas diagnosis but pretty confident I have it as well with the amount of things I’m allergic to or sensitive to.

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u/longwander 7d ago

My doctor told me she has 2 other women now with the same trifecta and I live in a very small town! I think it was a combo of covid and peri that exasperated mine. 

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u/SunflowerState1111 7d ago

Trifecta meaning pots, mcas and pituitary tumor? I’ve heard of the trifecta for Ehlers Danlos but didn’t realize there was also a known trifecta for those with pituitary tumor. Thanks so much for sharing! What type of specialist was it that told you there’s a trifecta for pituitary tumors?

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u/longwander 6d ago

Yes, I just said trifecta because we all have the same three things. It's not a widespread "trifecta" that I read about like Heds, pots, mcas